My week-long Ketamine Infusion

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After dealing with horrendous fibromyalgia pain for most of the last 6-8 weeks, I finally decided it was time to try another treatment. This one involves me going to hospital for 7 days for a ketamine infusion. The hope is that it will reset the way my brain interprets pain and either reduce or eliminate it (for the most part).

Since I was to check in at Wollongong Private Hospital at 12.30pm, we decided to get some lunch at the cafe. IMG_4664.jpgPin

So impressed to find such healthy food available at a hospital as it’s not always the case. It isn’t a vegetarian cafe, but I’d say that makes up 90% of the menu.

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Kevin and I both had the three cheese lentil triangles and the whole meal was amazing.

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We then “checked in” and were sent up to level 3 – the medical ward. My room was still being cleaned so we waited in the patient lounge.

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Of course I wasn’t that surprised when told I had one of the only two shared rooms in the ward !!! But I was also assured I’d be soon moved to a private room.

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Of course I also got the bed furthest from the window so didn’t get the enjoy the view from it.

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The hospital has only been open for a few months so everything is still brand new.

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The doc had quite a bit of trouble finding a working vein but got one on the 3rd try.

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Then it was time for the treatment to start.

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You start off on 2ml/hr, increasing by 2ml each hour. Obs are taken every hour until you reach your max dose, which you then stay on for 7 days.

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It was pretty hard to get settled into anything (reading, watching TV,etc) so I just chatted with my roommate, Beverly, who was also having her first infusion.

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The food here (at the least the vegetarian meals) were all delicious and I loved everything except for the scrambled eggs at breakfast).

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Funnily enough I hardly slept the first night and probably didn’t dose off until about 2am. Time felt really weird and I kept feeling like I’d just woken up, when you’re in that dazed state.

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The next morning things got very weird (luckily after Mum & Dad had visited) and I feel like I had a drugged trip (but not ever having done drugs I don’t know if I really did). Then my face started to feel numb, like I’d been to the dentist, and I was slurring my words. This meant the dose had to be lowered. I’d been on 10 and was taken back to 8 and all the symptoms went away. Around 5pm I was taken to my new (private room), where I had this awesome view from my bed !!

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The next morning I got to enjoy the sunrise without getting out of bed.

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Though Kevin felt he had the better view :-).

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My meds were increased again, but I suffered the same side effect, so it was back down to 9.

Mum & Dad bought me these gorgeous flowers.

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The doc decided to keep me on 9ml/hr since I was unable to tolerate a higher dose. The rest of my stay seemed to settled into a routine of enjoying the view, having the family visit, eating nice meals, sleeping (though sometimes not the best), and visiting with Beverly who was in a room nearby. I didn’t feel like watching the movies I had on ipad, or even reading, so I did lots of Disneyworld reading/planning.

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Unfortunately I had lots of problems with my canula and ended having 5 over the course of the week !!

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On my last night I was able to watch the Paris-Roubaix one day race from start to finish (except for a 1-2 nap during).

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It went until about 1am and I was so glad I stayed up to watch as it was won by Aussie Mat Hayman.

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My last sunrise before I was released just 6pm on Monday night.

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It’s still early days but it does seem like the treatment has worked. Tuesday was a bad day, but Wed and Thurs have been great. Only time will tell. Then of course is the question of long it will last. Most people tend to get 6-12 months before it’s back to hospital for another stay.

If you want to learn more about my stay please watch my vlogs –

Easter at Burrill Lake – Days 3 – 5

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Day 3 started with another cloudy sky. Everyone did their own thing for breakfast. I tried these oats – which were okay.

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After breakfast we hung out at the Powell’s van – trying to photograph the yellow tailed black cockatoos.

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Kevin, Thea, Viv & Sarah went for a drive into town, bringing back some delicious pies for lunch – and some balloons.

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The skies cleared up a bit in the afternoon and the tide was in.

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Later in the afternoon we joined some friends of the Powells’ for cheese and nibblies.

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While Athena & Viv continued making balloon animals.

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Which made them very popular with all the kids in the park :-).

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Easter Sunday involved Easter Eggs of course. But since I wasn’t feeling great I didn’t manage to get any photos (or video) of the kids opening their gifts. Christy got some new pjs and Athena a pop vinyl. Plus some Lindt eggs.

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Athena & Viv was nice enough to cook/BBQ breakfast for everyone.

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Today a petting zoo came to the park and it was lovely getting to interact with all the animals.

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I especially loved the calf.

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and this chicken, who was so soft.

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In the afternoon the sun finally appeared.

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And we finally got Christy and Alyssa out of the motorhome and off their computers and onto the standup paddleboards.

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It was a restful afternoon, and after working for a bit on my smashbook I went for a walk to the beach.

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As you can see the clouds had rolled back in.

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But I still enjoyed sitting on the dune watching the waves for some time…until I felt a few drops of rain and headed back, just in case it started pouring down (which it didn’t).

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Tonight Leanne made us a delicious potato gnocchi for dinner. Served with some garlic bread.

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On Easter Monday we were up and away rather punctually, hoping to beat the traffic home (which we did). We stopped at the Heritage Bakery in Milton to buy some breakfast.

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Kevin and I had quiches – with some of the best pastry I’ve ever had. However, we also bought some apple pies/turnovers, which really weren’t that great.

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We had a great trip home (and heard of bad traffic from people who left a few hours after we did). It was such a nice relaxing weekend – just hanging out and chatting. And, of course, eating :-).

 

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